How's Maddy doing ?

Madeleine was diagnosed with an abdomenal tumour on her dad's birthday, 12 May, 2005. On 31 May, this was confirmed as NHL, Non-Hodgkin's Lymphoma - Large B cell diffuse. Her chemotherapy treatment started that same evening. This blog gives you the latest news on just how she's doing.

Sunday, July 03, 2005

Connections

It seems important not to lose perspective here.
Recognising what's going on in the big wide world outside Ward 10 of St James's Hospital, Leeds can be quite therapeutic and the events of Saturday were certainly signifiacnt for the big wide world.
Is there a connection between Maddy's situation and all the Live8 / G8 issues ?
Absolutely.
Nobody who gets cancer can consider themselves lucky.
Whoever you are, whatever type of cancer it is, whenever it hits you - it's a rough deal and a really tough experience.
However, if you have cancer, then it's certainly fortunate if it can be treated somewhere like Jimmy's with the fabulous NHS machine behind it.
It's very reassuring and it means that Maddy has the best possible chance of pulling through.

It's a miserable reality however, that the picture is very different in other parts of the world, particularly in much of Africa, where people in Maddy's situation aren't getting the best possible chance with their treatments. Some forms of lymphoma are much more common across Africa, but survival rates are significantly lower.
".....the majority of children with malignancies in Africa can be cured with current standard treatment protocols, though survival rates are consistently below those in the West." (The Provision and outcome of Paediatric Oncology Care in Sub-Saharan Africa, Abby White)
"Equitable distribution of resources is an important ethical concern in cancer treatment. It is clear that, in Zimbabwe at least, and probably in much of the continent, there is plenty of scope for improvement in this respect." (Cancer survival in Africa, David Greenberg)

To paraphrase Bono from the Hyde park gig on Saturday - it's not about charity, it's about justice.


Meanwhile, back on Ward 10, Maddy is dealing with her own connections.
She has had to deal with a record number of connections to her drip machine over the last few days - for: blood, electrolytes, nutrition (TPN), anti-sickness drugs, painkillers, antibiotics and hydration (saline)....just about everything except chemotherapy

. As of today, she has been freed from two of that list, blood and electrolytes, but she is still very well 'connected'.

The boys of the family visited for the early (11.45 !) Sunday lunch today and stayed until mid-afternoon. Most of that time, Maddy was OK, but she does dip quite suddenly and unexpectedly - her BP still seems volatile and sudden changes for the worse can make her very drowsy.
Beth, Martha, May & Nigel are visiting around tea-time today.
Karen is scheduled for tomorrow teatime.

Today's flowers are courtesy of Gemma, Jamie and the Watts family of Formby, Nr Liverpool.

8 Comments:

  • At 8:16 pm, Anonymous Anonymous said…

    Good luck mads
    calum

     
  • At 12:23 am, Anonymous Anonymous said…

    Hi Maddy and Julie,

    I've been reading this blog lots (what a good idea, thanks Chris) and thinking of you both. Hope things go well for you next week.

    I thought you might like to see some photos from the Make Poverty History march in Edinburgh yesterday. Rowan and I went, it was huge, and strange to see everyone wearing white (so we looked like a human white band circling Edinburgh - I hope someone took some arial photos apart from the police helicopters...).
    In the park waiting to start marching
    and Marching (Rowan in bottom right)
    We found the woodcraft tent but didnt stay for the ceilidh!

    Lots of love from Ben, Sally, Rowan, Heather and Fin

     
  • At 11:35 am, Anonymous Anonymous said…

    Hey Maddy
    here are some photos which Marion took on the march, thought you'd like some pictures to go with Karen's account. Everyone seemed to have a great time. Keep blogging
    Love from Isobel, Marion, Richard and Gill

    Edinburgh

     
  • At 11:55 am, Anonymous Anonymous said…

    Hey Maddy
    here are some photos which Marion took on the march, thought you'd like some pictures to go with Karen's account. Everyone seemed to have a great time. Keep blogging
    Love from Isobel, Marion, Richard and Gill xxx

     
  • At 11:58 am, Anonymous Anonymous said…

    Hey Maddy
    here are some photos which Marion took on the march, thought you'd like some pictures to go with Karen's account. Everyone seemed to have a great time. Keep blogging
    Love from Isobel, Marion, Richard and Gill xxx

    Edinburgh

     
  • At 3:53 pm, Anonymous Anonymous said…

    Hiya hunni, how are you feeling today? Sorry I haven't rung you since I last saw u but I've got no credit n was watching live8 all saturday lol. I will txt u as soon as I get credit. I read this blog thing everyday it's such a good idea. Thanx Chris 4 updating it so much. luvya ldz hunni keep smilin if u can. Helenxxxxxxxxxxxxxxx

     
  • At 8:50 pm, Anonymous Anonymous said…

    The light at the end of the tunnel may seem a long way OFF

    but at least its still ON

    never ever give up

     
  • At 9:02 pm, Anonymous Anonymous said…

    great to see you in the madhouse which is an NHS hospital. All that staying indoors looking at blue patterned curtains is SOME experience. All three of you - Maddie, Chris and Julie - were very nice. Hope to visit again, either so that Chris and Julie can hold hands in another room or so that I can take Julie out for a cappuccino and danish.
    ...and maybe I could look in ALL Maddy's cupboards next time.

    xxxkerryxxx

     

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